Navigating Life with Traumatic Brain Injury: Ben's Story and Support System
In a world filled with unique and diverse individuals, it's important to shed light on the stories of those who face unique challenges and the networks of support that help them thrive. Today, we introduce you to Ben Barber, a 32-year-old with a compelling life journey shaped by a traumatic brain injury. Ben's story is one of resilience, determination, and the unwavering support of his family and caregivers.
Ben Barber, born on August 15, 1990, currently resides in the Central Coast, NSW, surrounded by family including of his loving mother, Narelle, his father, Max, his sisters, Bianca and Justine, and his adorable nephews and niece, Hugh, Rex, Alby, Otis and Faith.
Ben's life took a dramatic turn in 2005 when he was just 15 years old. A typical teenager, he enjoyed riding bikes with his friends, relishing the outdoors. However, one fateful day, while riding his bike through a grassy park area, his mountain bike gave way underneath him, resulting in a traumatic brain injury. His head was protected by a helmet, but the impact left him in a coma for 2.5 weeks. Ben had to relearn the most basic functions, including walking and talking.
His brain injury primarily affects the frontal lobe and the brain stem, leading to disordered executive function, a lack of impulse control, and memory loss. These challenges make Ben vulnerable in social settings, where he may struggle with appropriateness, boundaries, and choice of words.
Ben is fortunate to have a dedicated support system comprising family, caregivers, and friends who assist him in his daily life. They have developed strategies to help him navigate social interactions and achieve his goals. To prevent him from interrupting who is speaking, Ben is encouraged to gently signal when he wants to talk to someone. Ben occasionally uses inappropriate language without realising, but never with the intent of upsetting someone, in this scenario his support team kindly redirects him when needed. Maintaining personal space is a constant effort, requiring active supervision from his support network. When it comes to handshakes, Ben can at times perform them enthusiastically and firmly, he is working on adjusting his grip. Ben values friendships and is always actively seeking opportunities to connect with others, his team are always ready to support him in making new friends.
Ben's aspirations reflect his desire to lead a fulfilling life. He seeks meaningful employment, values his family, aims for physical fitness, and hopes to find a romantic relationship. Ben follows a dietary plan under the guidance of a naturopath. While there are no strict restrictions, he focuses on maintaining a healthy gut-brain connection. His caregivers set a positive example by making mindful food choices. Ben manages his finances through a house card system, carefully monitored by his caregivers. Any purchase over $50 requires approval, ensuring responsible spending. Ben actively engages in various activities, including bowling, volunteering, bike riding, and basketball at Terrigal Breakers Stadium with One Culture Support Services. He also loves to train at the gym, he does this at Planet Fitness in Gosford and Tuggerah. His interests encompass woodwork, biking, drawing, gardening, and photography. To enhance his memory recall, Ben uses his phone to take photos throughout the day. His caregivers maintain a detailed shift log, recording activities, moods, meals, and any issues or incidents.
Ben's story is a testament to the strength of the human spirit and the power of a loving support system. His journey, though marked by challenges, is filled with hope, determination, and a commitment to living life to the fullest. As we celebrate diversity and inclusion, let us be inspired by Ben's resilience and the unwavering support of those who stand by him on this remarkable journey.
If you wish to follow Bens journey online please head to his dedicated Instagram page @Lifeofbenbarber
